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Workshops

On the first day of the Congress, 11 March 2026, two workshop sessions will take place, each offering six parallel workshops.

Congress participants will be able to register for their preferred workshop for each session on a first-come, first-served basis, as seats are limited.

Please find here the full list of workshops:

Session 1 (14.00 – 15.30):

  1. Assessing fatigability in Spinal Muscular Atrophy: Exploring the contribution of neuromuscular junction dysfunction
    Organised by the Industry and Karen Chen
  1. Beyond boundaries: Elevating SMA care for the future
    Organised by the Industry
  1. Old signals, new insights: Electrophysiology as a biomarker in SMA
    Organised by Kathryn Swoboda and Renske Wadman
  1. MAPS – Mobility, Activity, Play, and Sports
    Organised by José Longatto
  1. Respiratory care in Spinal Muscular Atrophy
    Organised by Esther Veldhoen and Lisa Edel
  1. Nutritional management in SMA in the new treatment era: From fundamental science to clinical practice
    Organised by Simona Bertoli

Session 2 (16.00 – 17.30):

7. Every motor neuron matters – Biomarkers and treatment choice in SMA
    Organised by the Industry & Eduardo Tizzano

8. Contractures in SMA: From scientific insights to therapeutic targets
    Organised by FundAME 

9. Addressing unmet needs in SMA care through multidisciplinary collaboration and education
     Organised by the Industry

10. The role of early parental empowerment in management of emergencies and    urgencies at home in pharmacologically treated SMA type 1
     Organised by Chiara Mastella

11. SMA and neurodevelopmental disorders: A call for harmonized strategies
     Organised by Giovanni Baranello

12. Bench to bedside and back – Fundamental discoveries in connection with
Patient journeys
     Organised by Ewout Groen

If you are not yet registered for the Congress, you can register for both the Congress and the workshops here.

If you are already registered for the Congress, you can add workshop registration to your existing registration here.